NO MATTER WHICH COUNTRY –
NO MATTER WHICH LANGUAGE –
DYSLEXIA IS EVERYWHERE
THE EUROPEAN DYSLEXIA ASSOCIATION - International
Organisation for Specific Learning Disabilities AISBL
The European Dyslexia Association is a European non-governmental
umbrella organisation for national and regional associations of people
with dyslexia and other specific learning differences, children’s
parents, professionals and scientists. It was founded and legally
established under Belgium law in 1987 in Brussels as an international
non-profit association by representatives of ten national dyslexia
associations. It is the platform and the Voice of the people with
dyslexia and so called ‘Specific Learning Difficulties’ in Europe.
The EDA currently has 23 regional and national Effective Members in
21 EU countries plus Switzerland and Norway and 9 Adherent member
organisations; in all 32 member organisations in 24 European countries:
Austria, Belgium, Cyprus, the Czech Republic, Denmark, Finland,
France, Germany, Greece, Ireland, Italy, Lithuania, Luxembourg, Malta,
the Netherlands, Norway, Poland, Portugal, Slovenia, Spain, Sweden,
Switzerland and the United Kingdom.
The EDA is a Non-Governmental Organisation (NGO) in official
relation with UNESCO; a Full Member of the European Disability Forum (EDF);
and has Consultative Status with the International Federation of
Library Associations (IFLA).
According to substantiated scientific estimates, the group of
European Citizens with dyslexia and specific learning differencies
encompasses between 5 and 12 percent of the population, navigating
through life in a largely non-‘dys’ friendly world. Dyslexia is
the most widespread specific learning difference, making the acquiring
and using of reading, spelling and writing skills and other
communication-related cultural abilities difficult (commonly known as
‘DYS-differences’). Quoting academic surveys, other learning
differences as dysphasia, dyscalculia, dyspraxia and attention deficit
disorder exist commonly known as ‘DYS-differences’, (concluded
under ‘DYS’). A same person can also accumulate some of these
differences, dyslexia being associated to dysphasia, dyspraxia,
dyscalculia or attention deficit.
Co-occurrence of the DYS-differences is obvious:
50% of persons with dyslexia are dyspraxic as well.
40% of persons with dyspraxia are either dyslexic or have
differences in attention.
85 % of persons with dysphasia are dyslexic as well
20 % of persons with dyslexia are having differences in attention
with or without hyperactivity.
50 % of hyperactive children are dyslexic etc.
It is generally (and indisputably) known and documented that the
cultural abilities of reading and writing are among the most important
prerequisites in our society for individual cultural, social and
economic development and success. Furthermore, across Europe, the
diversity of languages and the multilingual demands, socio-cultural
backgrounds as well as educational opportunity, have a significant
influence on the manifestation of difficulties and life-chances for
children, adolescents and adults with DYS differences. Without
sufficient knowledge in this area, failure in school, employment,
general communication impairments and social segregation are common
threats, with well-known consequences in the lives of those affected,
their family members and society.
More than a century of research has enabled us to increase our
understanding of how humans acquire language and literacy skills, and
why people with dyslexia find the process difficult to access.
There have been significant advances in procedures that enable
earlier identification of dyslexia, determine which interventions work
best and then to develop appropriate support for people with dyslexia
in schools as well as the workplace.
Despite that, dyslexia presents concerns and challenges for
millions of children and adults across Europe. These challenges
require major changes for governments, policymakers and organisations
to improve attitudes, legislation and positive practice in education
and the workplace.
Many of the issues relating to dyslexia can be improved through
raising awareness of dyslexia and what can be done to adapt to it.
That is why the vision of the EDA is to ensure that "every child
and adult with dyslexia has the right to access and receive
appropriate support and opportunity to achieve their full potential in
education, training employment and life".
Researchers acknowledge that there are many possible causes of each
single or accumulated DYS differences, including genetics.
There is no relationship between a person's level of intelligence,
individual effort or socio-economic position and the presence of
dyslexia and /or a "DYS" difference.
It may be caused by a combination of difficulties in the cognitive
development of abilities like phonological processing, working memory,
rapid naming, sequencing and the automaticity of basic skills.
At its conferences and meetings the EDA provides a platform for the
most recent scientific findings in this area, best-practice
interventions in the field of education and extra-curricular
advancement as well as the advancement of affected individuals from
all parts of the European Union.
The EDA is particularly interested in supporting the creation and
development of national and regional organisations for people with
dyslexia across the whole of Europe.
The main aims of EDA is to inform people, politicians, policy
makers, trade and commerce unions and pressure groups in Europe about
the necessity of supporting those who are dyslexic or DYS in a
positive way, in order to avoid negative consequences caused by
inappropriate education and training, low self-esteem and
under-achievement which may lead to social exclusion.
With its wide angle of activities it facilitates the exchange of
information and good practice through international networking and
lobbying. In partnership with its member organisations, the EDA will
challenge prejudice and ignorance to ensure that people with dyslexia
and DYS are empowered to reach their full potential.
European DYS-organisations already work together in a Europe-wide
network as far as it concerns common targets towards European
Institutions. The EDA has positive experiences from working together
with EDF and would encourage other DYS organisations to join the EDF
to enhance the influence on the European Institutions.
This would facilitate exchange of information and good practice
through international networking and lobbying in partnership with
member organisations, governmental bodies and professionals working
within the different ‘dys’ communities.
The target is to ensure that every child and adult with Dysphasia,
Dyspraxia, Dyslexia, Dyscalculia or Attention Deficit Disorder, etc
has the right to access and to receive appropriate identification,
support and opportunity to achieve their full potential in education,
training, employment and all aspects of life.
How we function:
The activities of the EDA are organised and directed by volunteers.
A Board of Directors is elected at a General Assembly of the members
held every year. The Directors´ mandate is non-remunerative. The
Board meets at least three times a year.
Effective membership is restricted to non-profit making dyslexia
associations only. Other organisations with a scientific or social
interest in dyslexia can apply for adherent membership. However,
before acquiring Effective membership, non-profit making dyslexia
associations applying for membership are accepted as adherent members
only, but after two years they can apply for effective membership.
MISSION
The European Dyslexia Association is a European
umbrella organisation for national and regional associations of people
with dyslexia (and other DYS-differences), children’s parents and
professionals and academic researchers. It facilitates the exchange of
information and good practice through international networking and
lobbying. In partnership with its member organisations, the EDA will
challenge prejudice and ignorance to ensure that people with dyslexia
are empowered to reach their full potential.
VISION
Every child and adult with dyslexia (and/or
DYS-differences) in Europe has the right to access and to receive
appropriate support and opportunity to achieve their full potential in
education, training, employment and life.
Website: www.dyslexia.eu.com
Contact président: m.kalmar@utanet.at
Legal address:
c/o Bureau Felix & Felix sprl
Chaussée de Tubize 135
B-1440 Braine Le Château, Belgium
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